Not conceiving, and losing a pregnancy or a newborn.
Everything below was reached through this subject, not through the words you typed. Every row states how it was reached.
Qurʾān
القرآن6 shownVerses named for this subject by hand come first. The rest are found by the subject’s own Arabic and English senses and are shown as lexical matches, not as anchors anyone has confirmed.
Qur'ān 22:55Arabic sense: عقيم
وَلَا يَزَالُ ٱلَّذِينَ كَفَرُواْ فِي مِرۡيَةࣲ مِّنۡهُ حَتَّىٰ تَأۡتِيَهُمُ ٱلسَّاعَةُ بَغۡتَةً أَوۡ يَأۡتِيَهُمۡ عَذَابُ يَوۡمٍ عَقِيمٍ
The disbelievers will remain in doubt about it until the Hour suddenly overpowers them or until torment descends on them on a Day devoid of all hope
Qur'ān 42:50Arabic sense: عقيم
أَوۡ يُزَوِّجُهُمۡ ذُكۡرَانࣰ ا وَإِنَٰثࣰ اۖ وَيَجۡعَلُ مَن يَشَآءُ عَقِيمًاۚ إِنَّهُۥ عَلِيمࣱ قَدِيرࣱ
male to whoever He will, or both male and female, and He makes whoever He will barren: He is all knowing and all powerful
Qur'ān 51:29Arabic sense: عقيم
فَأَقۡبَلَتِ ٱمۡرَأَتُهُۥ فِي صَرَّةࣲ فَصَكَّتۡ وَجۡهَهَا وَقَالَتۡ عَجُوزٌ عَقِيمࣱ
His wife then entered with a loud cry, struck her face, and said, ‘A barren old woman?’
Qur'ān 51:41Arabic sense: عقيم
وَفِي عَادٍ إِذۡ أَرۡسَلۡنَا عَلَيۡهِمُ ٱلرِّيحَ ٱلۡعَقِيمَ
There is another sign in the Ad: We sent the life-destroying wind against them
Qur'ān 6:59Arabic sense: سقط
۞وَعِندَهُۥ مَفَاتِحُ ٱلۡغَيۡبِ لَا يَعۡلَمُهَآ إِلَّا هُوَۚ وَيَعۡلَمُ مَا فِي ٱلۡبَرِّ وَٱلۡبَحۡرِۚ وَمَا تَسۡقُطُ مِن وَرَقَةٍ إِلَّا يَعۡلَمُهَا وَلَا حَبَّةࣲ فِي ظُلُمَٰتِ ٱلۡأَرۡضِ وَلَا رَطۡبࣲ وَلَا يَابِسٍ إِلَّا فِي كِتَٰبࣲ مُّبِينࣲ
He has the keys to the unseen: no one knows them but Him. He knows all that is in the land and sea. No leaf falls without His knowledge, nor is there a single grain in the darkness of the earth, or anything, fresh or withered, that is not written in a clear Record
Qur'ān 7:149Arabic sense: سقط
وَلَمَّا سُقِطَ فِيٓ أَيۡدِيهِمۡ وَرَأَوۡاْ أَنَّهُمۡ قَدۡ ضَلُّواْ قَالُواْ لَئِن لَّمۡ يَرۡحَمۡنَا رَبُّنَا وَيَغۡفِرۡ لَنَا لَنَكُونَنَّ مِنَ ٱلۡخَٰسِرِينَ
When, with much wringing of hands, they perceived that they were doing wrong, they said, ‘If our Lord does not have mercy and forgive us, we shall be the losers.’
Tafsīr
التفسير6 shownCommentary on the verses above, at most two editions per verse.
en-al-jalalayn on 22:55en-al-jalalayncommentary on an ayah this subject surfaced
And those who disbelieve will not cease to be in doubt of it that is the Qur’ān — because of what Satan had cast onto the tongue of the Prophet s and what had thereafter been nullified — until the Hour comes upon them unawares that is the Hour of their death or of resurrection comes upon them suddenly or there come upon them the chastisement of a day of desolation ‘aqīm namely the day of Badr which held nothing of good for disbelievers much like a sterile wind rīh ‘aqīm that bears no good; or it means the Day of Resurrection referred to as ‘desolate’ because thereafter there will be no more night.
en-al-jalalayn on 42:50en-al-jalalayncommentary on an ayah this subject surfaced
Or He combines them that is to say or He makes them males and females; and He makes whomever He will infertile such that she is unable to conceive or he cannot have a child. Surely He is Knower of what He creates Powerful in bringing about whatever He will.
en-al-jalalayn on 51:29en-al-jalalayncommentary on an ayah this subject surfaced
Then his wife Sarah came forward clamouring shouting fī sarratin is a circumstantial qualifier that is to say she came shouting and smote slapped her face and said ‘A barren old woman!’ who has never given birth to a child aged ninety-nine with Abraham being one hundred years old; or alternatively he was a hundred and twenty years old and she was ninety years old.
en-tafisr-ibn-kathir on 22:55en-tafisr-ibn-kathircommentary on an ayah this subject surfaced
And those who disbelieved, will not cease to be in doubt about it until the Hour comes suddenly upon them, or there comes to them the torment of Yawm 'Aqim (55)The sovereignty on that Day will be that of Allah. He will judge between them. So those who believed and did righteous good deeds will be in Gardens of Delight (56)And those who disbelieved and denied Our Ayat, for them will be a humiliating torment (in Hell)(57)
The Disbelievers will remain in Doubt and Confusion
Allah tells us that the disbelievers will remain in doubt concerning this Qur'an. This was the view of Ibn Jurayj and was the view favored by Ibn Jarir.
حَتَّىٰ تَأْتِيَهُمُ السَّاعَةُ بَغْتَةً
(until the Hour comes suddenly upon them,) Mujahid said: "By surprise." Qatadah said:
بَغْتَةً
(suddenly) means, the command of Allah will catch the people unaware. Allah never seizes a people except when they are intoxicate
en-tafisr-ibn-kathir on 42:50en-tafisr-ibn-kathircommentary on an ayah this subject surfaced
To Allah belongs the kingdom of the heavens and the earth. He creates what He wills. He bestows female upon whom He wills, and bestows male upon whom He wills (49)Or He bestows both males and females, and He renders barren whom He wills. Verily, He is the All-Knower and is Able (to do all things)(50)
Allah tells us that He is the Creator, Sovereign and Controller of the heavens and the earth. Whatever he wills happens, and whatever He does not will does not happen. He gives to whomsoever He wills and withholds from whomsoever he wills; none can withhold what He gives, and none can give what He withholds, and He creates whatever He wills.
يَهَبُ لِمَنْ يَشَاءُ إِنَاثًا
(He bestows female upon whom He wills.) means, He gives them daughters only. Al-Baghawi said, "And among them (those who were given daughters only) was Lut, peace be upon him."
وَيَهَبُ لِمَنْ يَشَاءُ الذُّكُورَ
(and b
en-tafisr-ibn-kathir on 51:29en-tafisr-ibn-kathircommentary on an ayah this subject surfaced
Has the story reached you, of the honored guests of Ibrahim (24)When they came in to him and said: "Salaman!" He answered: "Salamun" and said: "You are a people unknown to me. (25)Then he turned to his household, and brought out a roasted calf (26)And placed it before them (saying): "Will you not eat? (27)Then he conceived fear of them (when they ate not). They said: "Fear not." And they gave him glad tidings of a son having knowledge (28)Then his wife came forward with a loud voice; she smote her face, and said: "A barren old woman! (29)They said: "Even so says your Lord. Verily, He is the All-Wise, the All-Knower. (30)
The Guests of the Prophet Ibrahim
We mentioned this story before in Surah Hud and Al-Hijr. Allah said,
هَلْ أَتَاكَ حَدِيثُ ضَيْفِ إِبْرَاهِيمَ الْمُكْرَمِينَ
(Has the story reached you, of the honored guests of Ibrahim), whom Ibrahim honored and who,
فَقَالُوا سَلَ
Research library
المكتبة البحثية627 works heldPeer-reviewed work held with its DOI and abstract, labelled with the study design its publication types report. None of it has been read or assessed, so nothing here may be cited as showing anything. Retracted work is held for the record but never listed; a review that a later version replaced is listed under its replacement and marked.
10.1016/j.fertnstert.2014.03.012Fertility and sterility (2014)MEDLINE-indexed journal, not yet read by us; matched on Fertilization in Vitro, Infertility, Female, Pregnancy Rate, Reproductive Techniques, Assisted, Fertility, Infertility, Male, infertility A randomized clinical trial to determine optimal infertility treatment in older couples: the Forty and Over Treatment Trial (FORT-T).: Objective: To determine the optimal infertility therapy for women at the end of their reproductive potential.
Design: Randomized clinical trial.
Setting: Academic medical centers and private infertility center in a state with mandated insurance coverage.
Patient(s): Couples with ≥ 6 months of unexplained infertility; female partner aged 38-42 years.
Intervention(s): Randomized to treatment with two cycles of clomiphene citrate (CC) and intrauterine insemination (IUI), follicle stimulating hormon
10.1093/humrep/deae119Human reproduction (Oxford, England) (2024)MEDLINE-indexed journal, not yet read by us; matched on Infertility, Infertility, Female, Pregnancy Rate, Reproductive Techniques, Assisted, infertility, Pregnancy Rate The clinical effectiveness of the Mind/Body Program for Infertility on wellbeing and assisted reproduction outcomes: a randomized controlled trial in search for active ingredients.: Study question: Does the Mind/Body Program for Infertility (MBPI) perform better, due to certain distinctive elements, than a partly matched support group in improving the wellbeing and medically assisted reproduction (MAR) outcomes of women with elevated distress levels in a clinical setting?
Summary answer: While robust enhancements occurred in the wellbeing overall, the cognitive behavioural and formalized stress management elements of the MBPI allowed a significantly stronger improvement in
10.1186/s12884-019-2677-9BMC pregnancy and childbirth (2020)MEDLINE-indexed journal, not yet read by us; matched on Abortion, Spontaneous, Stillbirth, Perinatal Death, miscarriage, pregnancy loss Men's grief following pregnancy loss and neonatal loss: a systematic review and emerging theoretical model.: Background: Emotional distress following pregnancy loss and neonatal loss is common, with enduring grief occurring for many parents. However, little is known about men's grief, since the majority of existing literature and subsequent bereavement care guidelines have focused on women. To develop a comprehensive understanding of men's grief, this systematic review sought to summarise and appraise the literature focusing on men's grief following pregnancy loss and neonatal loss.
Methods: A systemat
10.1007/s10815-016-0690-8Journal of assisted reproduction and genetics (2016)MEDLINE-indexed journal, not yet read by us; matched on Infertility, Fertilization in Vitro, Pregnancy Rate, infertility, Pregnancy Rate The effects of psychosocial interventions on the mental health, pregnancy rates, and marital function of infertile couples undergoing in vitro fertilization: a systematic review.: Purpose: The purpose of this study was to examine the effects of psychosocial interventions on the mental health, pregnancy rates, and marital function of infertile couples undergoing in vitro fertilization (IVF), as determined through RCT studies.
Methods: Using the electronic databases PubMed, EMBase, Cochrane Library, CINAHL, PsycInfo, and CAJ, a systematic literature search was conducted in July 2015. MeSH terms, key words, and free words such as "infertility," "fertilization in vitro," "psy
10.1093/humrep/der246Human reproduction (Oxford, England) (2011)MEDLINE-indexed journal, not yet read by us; matched on Infertility, Fertilization in Vitro, Reproductive Techniques, Assisted, infertility Stress, distress and outcome of assisted reproductive technology (ART): a meta-analysis.: Background: A number of studies have investigated the relationship between psychological factors such as stress and distress (measured as anxiety and depression) and outcomes of assisted reproductive technology (ART). The results, however, are inconsistent, and the strength of any associations remains to be clarified. We conducted a systematic review and meta-analysis of the results of studies reporting on the associations between stress, anxiety, and depression and ART outcomes.
Methods: Prospe
10.1016/j.ajog.2019.06.051American journal of obstetrics and gynecology (2019)MEDLINE-indexed journal, not yet read by us; matched on Abortion, Spontaneous, Stillbirth, miscarriage The impact of occupational shift work and working hours during pregnancy on health outcomes: a systematic review and meta-analysis.: Backgroud: An increasing number of original studies suggest that exposure to shift work and long working hours during pregnancy could be associated with the risk of adverse pregnancy outcomes, but the results remain conflicting and inconclusive.
Objective: To examine the influences of shift work and longer working hours during pregnancy on maternal and fetal health outcomes.
Data sources: Five electronic databases and 3 gray literature sources were searched up to March 15, 2019.
Methods of study
Research library, full list
451 to 475 of 627Women's and men's perceptions of infertility and their associations with psychological adjustment: a dyadic approach.
Objectives: Research on illness perceptions and their associations with psychological adjustment to medical conditions has mostly focused on individuals coping with chronic diseases. The objective of the current study was to expand this research to the study of couples by examining the perceptions of infertility among couples undergoing treatment and their associations with each partner's psychological adjustment.
Design: The study was cross-sectional and included two samples that differed in the stage of treatment: Sample 1 included 72 couples at their first visit to an infertility clinic and Sample 2 included 49 couples at various stages of treatment.
Methods: Participants filled in the Illness Perception Questionnaire regarding the timeline, consequences and controllability of their fertility problem and Infertility-Specific Distress and Well-being Scales. Dyadic analyses were conduct…
matched on Infertility, Female (mesh), Infertility, Male (mesh), infertility (text)
Evaluation of marital and sexual interactions of Polish infertile couples.
Introduction: The World Health Organization defines infertility as inability to conceive despite regular sexual intercourse sustained for a period exceeding 12 months with no contraceptive methods.
Aim: The aim of this study was to evaluate the effect of infertility on marital and sexual interactions among infertile couples.
Methods: Two hundred six infertile couples were qualified to the study as the research group. The control group consisted of 190 fertile couples.
Main outcome measures: A specific questionnaire was used as a research tool in this study. It included the sociodemographic part, infertility status, and validated scales: Polish version of Index of Marital Satisfaction and Index of Sexual Satisfaction. Statistica 6.0 (Medical University of Silesia; Katowice, Poland) was used in the statistical analysis. The statistical analysis made use of: Mann-Whitney U-test, chi-square …
matched on Infertility, Female (mesh), Infertility, Male (mesh), infertility (text)
Depression and Anxiety in Pathways of Medically Assisted Reproduction: The Role of Infertility Stress Dimensions.
Background: Depressive and anxious symptoms are common psychological reactions to infertility and Medically Assisted Reproduction (MAR). No study compared depressive and anxious symptoms and infertility stress dimensions across homologous and heterologous MAR, nor explored the specific role of the infertility stress dimensions in the two pathways. Homologous MAR may be associated with higher distress as the couple feel that the responsibility to reproduce and carry on the family line falls on them, and they feel inadequate if they are unable to bear children.
Objective: We compared depressive/anxious symptoms and infertility stress dimensions between individuals undergoing homologous and heterologous MAR. We also explored the association between the infertility stress dimensions and depressive/anxious symptoms separately in two MAR pathways.
Methods: Two-hundred twenty-six individuals pa…
matched on Infertility (keyword), infertility (text)
Mukherjee R (2026)MEDLINE-indexed journal, not yet read by usBMC pregnancy and childbirth1 citations Study protocol to develop bereavement care package for the Indian healthcare system to support parents of stillborn babies.
BACKGROUND: India is estimated to have the largest number of stillbirths globally. Although the health system in India has made significant strides in maternal and newborn care, the bereavement needs of the parents’ experiencing stillbirth have not received attention. As recognising that grief and coping processes are influenced by many socio-cultural contexts, it is critical to comprehend the experiences and unmet needs of bereaved families in India. Therefore, this study aims to develop a culturally appropriate bereavement care package that is integrated within the current maternal health services to support bereaved parents and families across all levels of care. METHODS: Stillbirth for this study is defined as a baby who dies after 28 weeks of gestation before or during the birth. The components will include a scoping review to summarise bereavement practices within healthcare settin…
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Popoola T (2026)MEDLINE-indexed journal, not yet read by usJournal of transcultural nursing : official journal of the Transcultural Nursing Society "You First Break the News to the Relative": Stillbirth Bereavement Care Practices in Nigeria.
Introduction: Nigeria has one of the highest rates of stillbirth in the world. Existing research about the state of bereavement care continues to paint a bleak picture. This study explores the stillbirth bereavement care practices of Nigerian midwives.
Method: Purposive sampling was employed to recruit a sufficient sample of 11 Nigerian midwives, who were subsequently interviewed using a semi-structured interview guide. Data were analyzed using the template analysis technique, which involved the use of a coding template to organize themes.
Results: Two main themes were identified: "Family-first, woman later" describes the practice of communicating stillbirth diagnoses to families before informing the woman; "Beliefs-driven care" describes the role of cultural values in facilitating some aspects of care, such as holistic care, while hindering other aspects such as memory-making.
Discussio…
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Women's lived social-cultural and clinical experiences and navigation process after stillbirth in Dodoma Region, Tanzania: A phenomenological study.
Background: In Tanzania, stillbirth is a public health challenge. The care provided to women after stillbirth does not reflect standards. Little is known on view of the social and clinical human experience surrounding this tragedy. This study explored women lived social-cultural and clinical experiences and the navigation process after stillbirth in Dodoma.
Method: A phenomenological qualitative approach was conducted from February 15, 2024, to May 30, 2024, involving in-depth interviews with 12 informants (postnatal women) who were purposefully selected, achieving data saturation at 9 informants. Data were transcribed verbatim, manifest coded, and analysed using conventional content analysis. Subsequently, sub-categories and main categories were generated. At the theorizing phase, the conceptual interpretation of categories and subcategories were used to generate the conceptual framewor…
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Dube K, Marenga F, Ayebare EO, Bedwell C, Chaudhry N, Chilinda I, Chimwaza A, Devane D, Fattepur S, Goshomi U, Kiran T, Laisser R, Lavender T, Mills TA, Nabisere A, Un Nisa Z, Vwalika B, Wakasiaka S, Kirkham JJ (2025)MEDLINE-indexed journal, not yet read by usBMJ global health5 citations A meta-core outcome set for stillbirth prevention and bereavement care following stillbirth in LMIC.
Study objective: Stillbirth is burdensome in low-income and middle-income countries (LMICs), especially in sub-Saharan Africa and South Asia. Currently, there are two core outcome sets (COS) for stillbirth (prevention and bereavement care), but these were developed with limited reflection of the needs of parents in an LMIC setting. To address this gap, the objective of this study was to establish consensus on the most important outcomes for stillbirth prevention and bereavement care following stillbirth in sub-Saharan Africa and South Asia.
Methods: Previous stillbirth outcomes were reviewed for inclusion into the COS by senior research leaders and community engagement and involvement members from six sub-Saharan African and two South Asian countries. An online real-time Delphi survey was then conducted with healthcare professionals, parents who have experienced a stillbirth and research…
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'Every Woman Wants to Know What Came out of Her Body': Grief Experiences of Women After Stillbirth in Nigeria.
Stillbirth commonly affects women in Nigeria, but their experiences of grief following stillbirth is under explored. This study aimed to describe Nigerian women's experiences of grief after stillbirth. Face-to-face, semi-structured interviews were conducted with 20 women in Nigeria who experienced stillbirth. The results from the thematic analysis suggest that mothers had an unmet need to see their stillborn baby, and they experienced communication challenges such as being blindsided/misled about the baby during their interactions with health personnel. The participants experienced emotional and psychological reactions to grief that manifested in the form of emotional pain, sadness, blame and shock, but having a sense of gratitude helped them cope. The findings of this study highlight gaps in bereavement care and suggest the need for basic bereavement training for health personnel.
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A Phenomenological Study of Clinical Stillbirth Management for Grieving Mothers.
For any expectant mother, the worst possible outcome of pregnancy is for the baby to die. The experience can lead to various forms of physical and psychosocial morbidity. The purpose of this study was to gain in-depth understanding of the experiences of mothers who suffered stillbirth with a view to improving the clinical management of stillbirth. Semi-structured qualitative interviews were conducted with ten women who had experienced stillbirths within one year prior to the interview. The interviews were recorded and transcribed verbatim. The data were analyzed using Smith's interpretative phenomenological analysis (IPA) model and ATLAS.ti 8 software. Healthcare professionals identified three main themes: clinical management for stillbirth and bereaved mothers across various roles; public hospitals; and the Jordanian Ministry of Health Policies and Guidelines. The study findings undersc…
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Parents' descriptions of labouring with an antepartum fetal death: Findings from the Birthing in Grief study.
Background: Evidence to guide intrapartum care when an unborn baby has died is limited.
Aims: To explore parents' experiences of care during labour of an antepartum stillbirth.
Materials and methods: Semi-structured interviews with 18 bereaved parents from across Australia. Content analysis was conducted.
Findings: Two broad themes were identified: 'explaining every step' and 'helping us feel like parents.' Sub-themes under the first broad theme, 'explaining every step', were 'how and when information was given' and 'what happens next.' 'Like any other parent', 'feeling the pain' and 'everything is clouded' were sub-themes of the second broad theme. These findings mapped to current Australian clinical practice guidelines for bereavement care around stillbirth and neonatal death, ie good communication, recognition of parenthood, shared decision making and effective support.
Conclusions: T…
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Gaps in Stillbirth Bereavement Care: A Cross-Sectional Survey of U.S. Hospitals by Birth Volume.
Objectives: The quality and scope of perinatal bereavement care in the United States has been evaluated by surveying bereaved parents, but little is known about how care varies across hospitals. We sought to survey clinicians about stillbirth bereavement care practices at U.S. hospitals and to evaluate care by hospital birth volume.
Methods: Using American Hospital Association data, we employed stratified random sampling to select 300 hospitals from all centers with at least 100 annual deliveries. Within each state, we divided all hospitals into size quartiles and randomly selected from each until we reached the goal number per state. We then identified a staff member knowledgeable about typical bereavement care on labor and delivery at each hospital and sent an on-line survey about care. We linked survey data with hospital characteristics and used summary statistics, Chi squared, and Fi…
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Good practices in perinatal bereavement care in public maternity hospitals in Southern Spain.
Objective: To assess the attitudes and care practices of midwives and nurses in the province of Granada in relation to death care and perinatal bereavement, to determine their degree of adaptation to international standards and to identify possible differences in personal factors among those who best adapt to international recommendations.
Design: A local survey of 117 nurses and midwives from the five maternity hospitals in the province was conducted using the Lucina questionnaire developed to explore professionals' emotions, opinions, and knowledge during perinatal bereavement care. Adaptation of practices to international recommendations was assessed using the CiaoLapo Stillbirth Support (CLASS) checklist. Socio-demographic data were collected to establish their association with increased compliance with recommendations.
Findings: The response rate was 75.4%, the majority were women (…
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Actis Danna V, Lavender T, Laisser R, Chimwaza A, Chisuse I, Kasengele CT, Kimaro D, Kuzenza FD, Lyangenda K, Mwamadi M, Shayo H, Tuwele K, Wakasiaka S, Bedwell C (2023)MEDLINE-indexed journal, not yet read by usWomen and birth : journal of the Australian College of Midwives8 citations Exploring the impact of healthcare workers communication with women who have experienced stillbirth in Malawi, Tanzania and Zambia. A grounded theory study.
Background: Communication and interaction with healthcare workers at the time of stillbirth remain in parents' long-term memories and impact on emotional and psychological well-being. Cultural attitudes and norms influence how stillbirth is acknowledged and discussed in society. There is limited evidence on how women from sub-Saharan Africa became aware of the death of their babies. This research explored how women perceived the approach adopted by healthcare workers when the news of their stillbirth was disclosed to them.
Methods: Grounded theory study. Women (n = 33) who had birthed a stillborn baby in the preceding 12 months were purposively sampled and participated in in-depth interviews (9 in Zambia, 16 in Tanzania and 8 in Malawi). Informed consent was gained from all participants. Data were analysed via a coding process using constant comparative analysis.
Findings: Women sacrific…
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Communication and shared decision-making after stillbirth: Results of the ShaDeS study.
Background: Shared decision-making (SDM) is included in guidelines for bereavement care after a stillbirth, as it can improve women's long-term health and wellbeing. SDM within the stillbirth context is still not common, and Italy does not yet have standardised guidelines.
Aim: The ShaDeS (Shared Decision-Making in Stillbirth) study aims to investigate how Italian women with a stillbirth perceive their own centrality in decision-making processes around bereavement care and how this might impact satisfaction of care.
Methods: The ShaDeS study is a cross-sectional study based on a web survey consisted of four sections: sociodemographic information and medical history, communication of bad news and bereavement care, decisions about childbirth (SDM-Q-9, SHARED, and DCS), and decisions and communication about autopsy (CPS).
Findings: 187 women answered the survey. For the 41.1% of women that …
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Providing Lactation Care Following Stillbirth, Neonatal and Infant Death: Learning from Bereaved Parents.
Objective: The study aimed to identify how, from the perspective of bereaved parents, hospital-based health professionals can better meet their lactation care needs. Methods: In-depth interviews were conducted with 17 mothers and 7 fathers bereaved by stillbirth, neonatal death, or older infant death. Participants were recruited from three large hospitals in Eastern Australia including two with human milk banks. Qualitative thematic data analysis identified bereaved parents' lactation experiences, needs, and how parents wanted lactation care to be provided. Results: Participants experienced lactation after infant death as hard and challenging, while at the same time they received limited lactation care. The negative impact of lactation, however, could be mediated by anticipatory guidance, assistance to make sense of lactation, support to make decisions from available lactation and breast…
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'There is trauma all round': A qualitative study of health workers' experiences of caring for parents after stillbirth in Kenya and Uganda.
Background: Stillbirth is a traumatic life-event for parents. Compassionate care from health workers supports grief and adjustment, alleviating psychological distress and minimising serious adverse health and social consequences. Bereavement support in facilities in LMICs, including in sub-Saharan Africa, often fails to meet parents' needs. However, very few studies have explored health worker's experiences in these settings.
Aim: To explore the lived experiences of midwives, doctors and others, caring for women after stillbirth in Kenya and Uganda.
Methods: Qualitative, guided by Heideggerian phenomenology. Sixty-one health workers, including nurse-midwives (N = 37), midwives (N = 12) and doctors (N = 10), working in five facilities in Kenya and Uganda, were interviewed. Data were analysed following Van Manen's reflexive approach.
Results: Three main themes summarised participants' expe…
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de Graaff EC, Leisher SH, Blencowe H, Lawford H, Cassidy J, Cassidy PR, Draper ES, Heazell AEP, Kinney M, Quigley P, Ravaldi C, Storey C, Vannacci A, E. P. S. in High-Resource Countries Scorecard Collaboration Group, Flenady V (2023)MEDLINE-indexed journal, not yet read by usBMC pregnancy and childbirth7 citations Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries.
Background: Despite progress, stillbirth rates in many high- and upper-middle income countries remain high, and the majority of these deaths are preventable. We introduce the Ending Preventable Stillbirths (EPS) Scorecard for High- and Upper Middle-Income Countries, a tool to track progress against the Lancet's 2016 EPS Series Call to Action, fostering transparency, consistency and accountability.
Methods: The Scorecard for EPS in High- and Upper-Middle Income Countries was adapted from the Scorecard for EPS in Low-Income Countries, which includes 20 indicators to track progress against the eight Call to Action targets. The Scorecard for High- and Upper-Middle Income Countries includes 23 indicators tracking progress against these same Call to Action targets. For this inaugural version of the Scorecard, 13 high- and upper-middle income countries supplied data. Data were collated and comp…
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An exploration of health workers' experiences in providing bereavement care to mothers following a stillbirth: results from a subnational level health system in Uganda.
Background: Stillbirth is a profound emotion-laden event to the mothers and health workers who provide care due to its sudden and unexpected occurrence. Health workers offering support in regions shouldering the highest-burden experience providing support to a stillbirth mother in their professional lifetime. However, their experiences seldom get documented as much of the focus is on mothers causing a dissonance between parental and clinical priorities. This study aimed to explore the health worker's experiences in the provision of bereavement care to mothers following a stillbirth.
Methods: An exploratory cross-sectional qualitative study was undertaken on a purposively selected sample of key informants drawn from frontline health workers and health systems managers providing maternal health services at a subnational level health system in Uganda. An interview guide was used to collect …
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McNamara K, Smith A, Shine B, Cregan M, Prihodova L, O'Shaughnessy A, Martin A, Macdonald J, Kingston P, Fitzpatrick C, Hennessy M, O'Donoghue K (2022)MEDLINE-indexed journal, not yet read by usPloS one8 citations Addressing obstetricians' awareness of compassion, communication, and self-care when caring for families experiencing stillbirth: Evaluation of a novel educational workshop using applied drama techniques.
Introduction: Obstetricians describe feeling shocked and isolated following stillbirth. Few receive adequate training in how to care for bereaved parents or themselves. We developed a novel workshop for trainee obstetricians using applied drama techniques-in collaboration with the National Theatre of Ireland, the national training body for obstetricians and gynaecologists, and patient support groups-to teach obstetricians skills in communication and self-care around the time of stillbirth.
Materials and methods: Five workshops, delivered January-May 2018, are the focus of this evaluation. Senior trainees in Obstetrics attended and completed a post-workshop evaluation questionnaire. Five-point Likert scales were used to assess participants' communication and support skills pre- and post- the workshop, and their views on pre-specified attributes needed when caring for families experiencing…
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Ravaldi C, Carelli E, Frontini A, Mosconi L, Tagliavini S, Cossu E, Crescioli G, Lombardi N, Bonaiuti R, Bettiol A, Facchinetti F, Vannacci A (2022)MEDLINE-indexed journal, not yet read by usWomen and birth : journal of the Australian College of Midwives24 citations The BLOSSoM study: Burnout after perinatal LOSS in Midwifery. Results of a nation-wide investigation in Italy.
Background: Respectful care of bereaved parents after stillbirth plays a pivotal role in enabling the grieving process and reducing the traumatic impact of this life-changing event. Unfortunately, professionals and midwives, in particular, are often emotionally unprepared and frequently left alone when dealing with these stressful events.
Aim: The BLOSSoM (Burnout after perinatal LOSS in Midwifery) study aims to address the levels of professional burnout in Italian midwives and evaluate the psychological impact of bereavement care on professionals.
Methods: Web-based cross-sectional study, including socio-demographic questionnaire, survey on the knowledge of guidelines for stillbirth management and two psychometric tests: Maslach Burnout Inventory (MBI) and Impact of Event Scale - Revised (IES-R).
Findings: Of 445 female midwives, mean age 35.1 (SD 9.9), working years 11.2 (SD 10.2), 149…
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Is care of stillborn babies and their parents respectful? Results from an international online survey.
Objective: To quantify parents' experiences of respectful care around stillbirth globally.
Design: Multi-country, online, cross-sectional survey.
Setting and population: Self-identified bereaved parents (n = 3769) of stillborn babies from 44 high- and middle-income countries.
Methods: Parents' perspectives of seven aspects of care quality, factors associated with respectful care and seven bereavement care practices were compared across geographical regions using descriptive statistics. Respectful care was compared between country-income groups using multivariable logistic regression.
Main outcome measures: Self-reported experience of care around the time of stillbirth.
Results: A quarter (25.4%) of 3769 respondents reported disrespectful care after stillbirth and 23.5% reported disrespectful care of their baby. Gestation less than 30 weeks and primiparity were associated with disrespect.…
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Rural Perinatal Loss: A Needs Assessment.
The purpose of this research was to ascertain the availability and depth of services of bereavement care for mothers who live rurally. The specific focus is on those who experienced early losses including pregnancy, stillbirth, neonatal, and young children who were born with fetal anomalies or neonatal disease that resulted in death. The convenience (nonprobability) sample originated from a population of mothers who lived in rural east central Minnesota. Participants were interviewed in a 60-minute interval. All data were coded confidential. Common themes, incidence of resources, or lack of bereavement resources for the participants' lived experiences were considered using a descriptive phenomenological approach. Our appreciation of the continuing bond between mother and child compels us to believe that there is an ethical obligation to reduce and remove these barriers and inequalities i…
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Horey D, Boyle FM, Cassidy J, Cassidy PR, Erwich JJHM, Gold KJ, Gross MM, Heazell AEP, Leisher SH, Murphy M, Ravaldi C, Siassakos D, Storey C, Vannacci A, Wojcieszek A, Flenady V (2021)MEDLINE-indexed journal, not yet read by usBirth (Berkeley, Calif.)27 citations Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countries.
Background: Stillbirth, the death of a baby before birth, is associated with significant psychological and social consequences that can be mitigated by respectful and supportive bereavement care. The absence of high-level evidence to support the broad scope of perinatal bereavement practices means that offering a range of options identified as valued by parents has become an important indicator of care quality. This study aimed to describe bereavement care practices offered to parents across different high-income and middle-income countries.
Methods: An online survey of parents of stillborn babies was conducted between December 2014 and February 2015. Frequencies of nine practices were compared between high-income and middle-income countries. Differences in proportions of reported practices and their associated odds ratios were calculated to compare high-income and middle-income countrie…
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'I should have seen her face at least once': parent's and healthcare providers' experiences and practices of care after stillbirth in Kabul province, Afghanistan.
Objective: This study aimed to explore bereaved parents' and healthcare providers experiences of care after stillbirth.
Study design: Qualitative in-depth interviews with 55 women, men, female elders, healthcare providers and key informants in Kabul province, Afghanistan between October and November 2017.
Results: Inadequate and insensitive communication and practices by healthcare providers, including avoiding or delaying disclosing the stillbirth were recurring concerns. There was a disconnect between parents' desires and healthcare provider's perceptions. The absence of shared decision-making on seeing and holding the baby and memory-making, manifested as profound regret. Health providers' reported hospitals were not equipped to separate women who had a stillbirth and acknowledged that psychological support would be beneficial. However, the absence of trained personnel and resource co…
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Das MK, Arora NK, Debata P, Chellani H, Rasaily R, Gaikwad H, Meena KR, Kaur G, Malik P, Joshi S, Kumari M (2021)MEDLINE-indexed journal, not yet read by usBMC pediatrics9 citations Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study.
Background: Information on exact causes of death and stillbirth are limited in low and middle income countries. Minimally invasive tissue sampling (MITS) is increasingly practiced in place of autopsy across several settings. A formative research documented the experiences of counselling and consenting for MITS in north India.
Methods: This exploratory qualitative study was conducted at a tertiary care hospital in Delhi. During the early implementation of MITS, observations of the counselling and consenting process (n = 13) for under-five child death and stillbirths were conducted. In-depth interviews with MITS team members (n = 3) were also conducted. Observation and interview data were transcribed and inductively analysed using thematic content analysis to identify emerging themes and codes.
Results: The MITS team participated in daily ward rounds for familiarisation with parents/famili…
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